Most unacceptable behavior is in response to unmet personal needs, frustration,
or a sense of powerlessness.
People with Huntington's Disease (HD), because of organic brain damage, are unable to rationalize certain
situations and, therefore may appear to be irrational, demanding, or selfish.
They are often unable to learn new tasks. Techniques using reward and punishment and behavior modification are beyond their
In difficult situations, caregivers who are tired and overworked may stop rationalizing the behavior and fall into
the trap of reacting to it by becoming either authoritarian, rude, or even angry.
Often caregivers will forget that the person with HD is brain impaired, and that the impairment is one of the reasons for
Don't argue with the person. Remember he or she may no longer have the ability to be as rational as you.
- Don't order the person around. Few of us like to be "bossed" and the HD person is no exception. State directions positively
rather than negatively. Instead of "You can't go," say something like, "Let's look at these pictures."
- Don't be condescending. A condescending tone may provoke anger even if the words are not understood.
- Don't ask a lot of questions that rely on good memory. Remember, the person may have memory loss and may feel humiliated
or angry if you ask questions he or she can't answer.
- Don't speak about the person as if he or she were not there.
Do try distracting the person. Diverting the person's attention to a different activity, offering a snack, may be enough
to diffuse an angry mood.
- Do ignore the verbal outburst if you can't think of any positive response.
- Do reward positive behavior with a favorite food, a hug, sincere praise.
- Do offer "cooling off" time in a quite room. It can help the person regain control of feelings or behavior.
- Do try forms of communication that don't involve words.